Aproximacions a la perspectiva de la persona en tractament de manteniment amb metadonareflexions a propòsit de 10 anys de recerca

Referencias bibliográficas

• Alves, P.C., Sales, C.M. & Ashworth, M. (2013). Enhancing the patient involvement in outcomes: a study protocol of personalised outcome measurement in the treatment of substance misuse. BMC Psychiatry, 13, 337. doi:10.1186/1471-244X-13-337
• Alves, P.C., Sales, C.M. & Ashworth, M. (2015). Personalising the evaluation of substance misuse treatment: a new approach to outcome measurement. International Journal of Drug Policy, 26, 333-335. doi:10.1016/j.drugpo.2014.11.014
• Alves, P.C., Sales, C.M. & Ashworth, M. (2016). “It is not just about the alcohol”: service users’ views about individualised and standardised clinical assessment in a therapeutic community for alcohol dependence. Substance Abuse Treatment, Prevention, and Policy, 11, 25. doi:10.1186/s13011-016-0070-5
• Amato, L., Minozzi, S., Davoli, M. & Vecchi, S. (2011). Psychosocial combined with agonist maintenance treatments versus agonist maintenance treatments alone for treatment of opioid dependence. Cochrane Database of Systematic Reviews, (10), CD004147. doi:10.1002/14651858.CD004147
• Atkinson, M.J., Sinha, A., Hass, S.L., Colman, S.S., Kumar, R.N., Brod, M. & Rowland, C.R. (2004). Validation of a general measure of treatment satisfaction, the Treatment Satisfaction Questionnaire for Medication (TSQM), using a national panel study of chronic disease. Health and Quality of Life Outcomes, 2, 12. doi:10.1186/1477-7525-2-12
• Badia, X. & Bigorra, J. (2000). La Investigación de Resultados en Salud: de la evidencia a la práctica clínica. A X. Badia (Ed.), La investigación de resultados en salud: De la evidencia a la práctica clínica (pp. 13-34). Barcelona: Edimac.
• Ball, J.C., Graff, H. & Sheehan, J.J. (1974). The heroin addicts’ view of methadone maintenance. British Journal of Addiction to Alcohol and Other Drugs, 69, 89-95. doi:10.1111/j.1360-0443.1974.tb01285.x
• Barr, P.J. & Elwyn, G. (2016). Measurement challenges in shared decision making: putting the ‘patient’ in patient-reported measures. Health Expectations, 19, 993-1001. doi:10.1111/hex.12380
• Bassi, J. (2014). Cuali/cuanti: La distinción paleozoica. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 15, 7. Consultat des de http://nbnresolving.de/urn:nbn:de:0114-fqs140279
• Batalden, M., Batalden, P., Margolis, P., Seid, M., Armstrong, G., Opipari-Arrigan, L. & Hartung, H. (2016). Coproduction of healthcare service. BMJ Quality & Safety, 25, 509-517. doi:10.1136/bmjqs-2015-004315
• Bédard, P.-O. & Ouimet, M. (2016). Persistent misunderstandings about evidence-based (sorry: informed!) policy-making. Archives of Public Health, 74, 31. doi:10.1186/s13690-016-0142-z
• Beresford, P. (2005). Theory and practice of user involvement in research. A L. Lowes & I. Hulatt (Eds.), Involving service users in health and social care research (pp. 6-17). Abingdon: Routledge.
• Beresford, P. (2006). A service-user perspective on evidence. A M. Slade & S. Priebe (Eds.), Choosing methods in mental health research (pp. 223-230). Hove: Routledge.
• Bilsbury, C.D. & Richman, A. (2002). A staging approach to measuring patient-centred subjective outcomes. Acta Psychiatrica Scandinavica, 106(Supl. 414), 5-40. doi:10.1046/j.0001-690x.2002.00052.x
• Boden, M.T. & Moos, R. (2009). Dually diagnosed patients’ responses to substance use disorder treatment. Journal of Substance Abuse Treatment, 37, 335-345. doi:10.1016/j.jsat.2009.03.012
• Boote, J., Telford, R. & Cooper, C. (2002). Consumer involvement in health research: a review and research agenda. Health Policy, 61, 213-236. doi:10.1016/ S0168-8510(01)00214-7
• Brener, L., Resnick, I., Ellard, J., Treloar, C. & Bryant, J. (2009). Exploring the role of consumer participation in drug treatment. Drug and Alcohol Dependence, 105, 172-175. doi:10.1016/j.drugalcdep.2009.06.016
• Callard, F., Rose, D. & Wykes, T. (2012). Close to the bench as well as at the bedside: involving service users in all phases of translational research. Health Expectations, 15, 389-400. doi:10.1111/j.1369-7625. 2011.00681.x
• Carel, H. & Kidd, I.J. (2014). Epistemic injustice in healthcare: a philosophical analysis. Medicine, Health Care and Philosophy, 17, 529-540. doi:10.1007/ s11019-014-9560-2
• Carroll, K.M., Kiluk, B.D., Nich, C., DeVito, E.E., Decker, S., LaPaglia, D., … Ball, S.A. (2014). Toward empirical identification of a clinically meaningful indicator of treatment outcome: features of candidate indicators and evaluation of sensitivity to treatment effects and relationship to one year follow up cocaine use outcomes. Drug and Alcohol Dependence, 137, 3-19. doi:10.1016/j.drugalcdep.2014.01.012
• Castro, E.M., Van Regenmortel, T., Vanhaecht, K., Sermeus, W. & Van Hecke, A. (2016). Patient empowerment, patient participation and patient-centeredness in hospital care: A concept analysis based on a literature review. Patient Education and Counseling, 99, 1923-1939. doi:10.1016/j.pec.2016.07.026
• Clarke, E., Puschner, B., Jordan, H., Williams, P., Konrad, J., Kawohl, W., … Slade, M. (2015). Empowerment and satisfaction in a multinational study of routine clinical practice. Acta Psychiatrica Scandinavica, 131, 369-378. doi:10.1111/acps.12365
• Day, E. & Mitcheson, L. (2017). Psychosocial interventions in opiate substitution treatment services: does the evidence provide a case for optimism or nihilism? Addiction, 112, 1329-1336. doi:10.1111/add.13644
• Doll, R. (1974). Surveillance and monitoring. International Journal of Epidemiology, 3, 305-314. doi:10.1093/ ije/3.4.305
• Dreyer, R.P., Jones, P.G., Kutty, S. & Spertus, J.A. (2016). Quantifying clinical change: discrepancies between patients’ and providers’ perspectives. Quality of Life Research, 25, 2213-2220. doi:10.1007/s11136-0161267-9
• Dugosh, K., Abraham, A., Seymour, B., McLoyd, K., Chalk, M. & Festinger, D. (2016). A systematic review on the use of psychosocial interventions in conjunction with medications for the treatment of opioid addiction. Journal of Addiction Medicine, 10, 93-103. doi:10.1097/ADM.0000000000000193
• Duke, K. & Thom, B. (2014). The role of evidence and the expert in contemporary processes of governance: the case of opioid substitution treatment policy in England. International Journal of Drug Policy, 25, 964971. doi:10.1016/j.drugpo.2014.01.015
• DuPont, R.L., Compton, W.M. & McLellan, A.T. (2015). Five-year recovery: A new standard for assessing effectiveness of substance use disorder treatment. Journal of Substance Abuse Treatment, 58, 1-5. doi:10.1016/j.jsat.2015.06.024
• Durose, C., Needham, C., Mangan, C. & Rees, J. (2017). Generating ‘good enough’ evidence for co-production. Evidence & Policy: A Journal of Research, Debate and Practice, 13, 135-151. doi:10.1332/174426415X14440 619792955
• Ferri, M., Davoli, M. & D’Amico, R. (2013). Involving patients in setting the research agenda in drug addiction. British Medical Journal, 347, f4513. doi:10. 1136/bmj.f4513
• Fischer, B., Rehm, J. & Kim, G. (2001). Quality of life (QoL) in illicit drug addiction treatment and research: Concepts, evidence and questions. A B. Westermann, C. Jellinek & G.V. Bellmann (Eds.), Substitution: Zwischen leben und sterben (pp. 21-40). Weinheim: Beltz Deutscher Studienverlag.
• Fricker, M. (2007). Epistemic injustice. Power and the ethics of knowing. Oxford: Oxford University Press.
• Goldenberg, M.J. (2009). Iconoclast or creed? Objectivism, pragmatism, and the hierarchy of evidence. Perspectives in Biology and Medicine, 52, 168-187. doi:10.1353/pbm.0.0080
• Gowing, L., Farrell M.F., Bornemann, R., Sullivan, L.E. & Ali, R. (2011). Oral substitution treatment of injecting opioid users for prevention of HIV infection. Cochrane Database of Systematic Reviews, (8), CD004145. doi:10.1002/14651858.CD004145.pub4
• Haywood, K.L., Staniszewska, S. & Chapman, S. (2012). Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/ myalgic encephalomyelitis (CFS/ME): a systematic review. Quality of Life Research, 21, 35-52. doi:10.1007/ s11136-011-9921-8
• Heath, I. (2017). The missing person: The outcome of the rule-based totalitarianism of too much contemporary healthcare. Patient Education and Counseling, 100, 1969-1974. doi:10.1016/j.pec.2017.03.030
• Heller, D., McCoy, K. & Cunningham, C. (2004). An invisible barrier to integrating HIV primary care with harm reduction services: philosophical clashes between the harm reduction and medical models. Public Health Reports, 119, 32-39. doi:10.1177/003335490 411900109
• Herdman, M. & Fernández, N. (2013). Los resultados comunicados por los pacientes en los ensayos clínicos. Lo importante para el paciente es lo que él percibe. A R. Dal-Ré, X. Carné & D. Gracia (Dirs.), Luces y sombras en la investigación clínica (pp. 325-346). Madrid: Triacastela.
• Heydtmann, M., Macdonald, B., Lewsey, J., Masson, N., Cunningham, L., Irnazarow, A., … Chick, J. (2015). Tailored dose baclofen in patients with alcoholic liver disease: A case series with 2-year follow-up of hospitalisation. Addiction Research & Theory, 23, 510-517. doi:10.3109/16066359.2015.1040003
• Hunt, G. & Barker, J.C. (1999). Drug treatment in contemporary anthropology and sociology. European Addiction Research, 5, 126-132. doi:10.1159/000018980
• Hunt, G. & Rosenbaum, M. (1998). “Hustling” within the clinic: Consumer perspectives on methadone maintenance treatment. A J.A. Inciardi & L.D. Harrison (Eds.), Heroin in the age of crack-cocaine (pp. 188-214). Thousand Oaks, CA: Sage.
• Hutchison, K., Rogers, W. & Entwistle, V.A. (en premsa). Addressing deficits and injustices: The potential epistemic contributions of patients to research. Health Care Analysis. doi:10.1007/s10728-016-0323-5
• Iraurgi, I. (2000). Calidad de vida en programas de metadona. Publicación Oficial de la Sociedad Española Interdisciplinaria del Sida, 11, 237-239.
• Iraurgi, I., Trujols, J., Jiménez-Lerma, J.M. & Landabaso, M. (2011). Valoración del impacto en salud de las adicciones: Propuesta de la calidad de vida como indicador para la evaluación de resultados. A J. Bobes, M. Casas & M. Gutiérrez (Eds.), Manual de trastornos adictivos (2a ed., pp. 203-211). Madrid: Enfoque Editorial.
• Jauffret-Roustide, M. (2004). Du point de vue des usagers, quels sont les effets, les bénéfices et les difficultés suscités par les TSO? Alcoologie et Addictologie, 26(Supl. 4), 328-335.
• Jones, A.L., Hanusa, B.H., Appelt, C.J., Haas, G.L., Gordon, A.J. & Hausmann, L.R. (2015). Racial differences in veterans’ satisfaction with addiction treatment services. Journal of Addiction Medicine, 9, 383-390. doi:10.1097/ADM.0000000000000144
• Katusiime, B., Corlett, S., Reeve, J. & Krska, J. (2016). Measuring medicine-related experiences from the patient perspective: a systematic review. Patient Related Outcome Measures, 7, 157-171. doi:10.2147/ PROM.S102198
• Kidd, I.J. & Carel, H. (2017). Epistemic injustice and illness. Journal of Applied Philosophy, 34, 172-190. doi:10.1111/japp.12172
• Lasch, K.E., Marquis, P., Vigneux, M., Abetz, L., Arnould, B., Bayliss, M., … Rosa, K. (2010). PRO development: rigorous qualitative research as the crucial foundation. Quality of Life Research, 19, 1087-1096. doi:10.1007/s11136-010-9677-6
• Leppo, A. & Perälä, R. (2017). Remains of care: opioid substitution treatment in the post-welfare state. Sociology of Health & Illness, 39, 959-978. doi:10.1111/ 1467-9566.12550
• Lobo, A., Pérez-Echeverría, M.J. & Artal, J. (1986). Validity of the scaled version of the General Health Questionnaire (GHQ-28) in a Spanish population. Psychological Medicine, 16, 135-140. doi:10.1017/ S0033291700002579
• Lomas, J., Pickard, L. & Mohide, A. (1987). Patient versus clinician item generation for quality-of-life measures. The case of language-disabled adults. Medical Care, 25, 764-769. doi:10.1097/00005650198708000-00009
• MacArthur, G.J., Minozzi, S., Martin, N., Vickerman, P., Deren, S., Bruneau, J., … Hickman, M. (2012). Evidence for the effectiveness of opioid substitution treatment in relation to HIV transmission in people who inject drugs: a systematic review and metaanalysis. British Medical Journal, 345, e5945. doi:10.1136/bmj.e5945
• Magasi, S., Ryan, G., Revicki, D., Lenderking, W., Hays, R.D., Brod, M., … Cella, D. (2012). Content validity of patient-reported outcome measures: perspectives from a PROMIS meeting. Quality of Life Research, 21, 739-746. doi:10.1007/s11136-011-9990-8
• Magura, S., Goldsmith, D.S., Casriel, C., Lipton, D.S., Goldstein, P.J., Spunt, B.J. & Strug, D.L. (1988). Patient-staff governance in methadone maintenance treatment: a study in participative decision making. International Journal of the Addictions, 23, 253-278. doi:10.3109/10826088809033072
• Marchand, K., Palis, H., Peng, D., Fikowski, J., Harrison, S., Spittal, P., … Oviedo-Joekes, E. (2015). The role of gender in factors associated with addiction treatment satisfaction among long-term opioid users. Journal of Addiction Medicine, 9, 391-398. doi:10.1097/ADM.000 0000000000145
• Mattick, R.P., Breen, C., Kimber, J. & Davoli, M. (2009). Methadone maintenance therapy versus no opioid replacement therapy for opioid dependence. Cochrane Database of Systematic Reviews, (3), CD002209. doi:10.1002/14651858.CD002209.pub2.
• McLellan, A.T., Arndt, I.O., Metzger, D.S., Woody, G.E. & O’Brien, C.P. (1993). The effects of psychosocial services in substance abuse treatment. Journal of the American Medical Association, 269, 1953-1959. doi:10.1001/jama.1993.03500150065028
• McNeil, R., Kerr, T., Pauly, B., Wood, E. & Small, W. (2016). Advancing patient-centered care for structurally vulnerable drug-using populations: a qualitative study of the perspectives of people who use drugs regarding the potential integration of harm reduction interventions into hospitals. Addiction, 111, 685694. doi:10.1111/add.13214
• Miller, P.G. & Miller, W.R. (2009). What should we be aiming for in the treatment of addiction? Addiction, 104, 685-686. doi:10.1111/j.1360-0443.2008.02514.x
• Mitchell, S.G., Schwartz, R.P., Reisinger, H.S., Peterson, J.A., Kelly, S.M., Lofti, S., … Brown, B.S. (2009, juny). Redefining retention: Three pathways for extending a treatment episode beyond a methadone program’s boundaries. Comunicació escrita presentada al 71st Annual Meeting of the College on Problems of Drug Dependence, Reno, NV.
• Mokkink, L.B., Prinsen, C.A., Bouter, L.M., Vet, H.C. & Terwee, C.B. (2016). The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) and how to select an outcome measurement instrument. Brazilian Journal of Physical Therapy, 20, 105-113. doi:10.1590/bjpt-rbf.2014.0143
• Neale, J., Bouteloup, A., Getty, M., Hogan, C., Lennon, P., Mc Cusker, M. & Strang, J. (en premsa). Why we should conduct research in collaboration with people who use alcohol and other drugs. Addiction. doi:10.1111/add.14015
• Neale, J. & Strang, J. (2015a). Blending qualitative and quantitative research methods to optimize patient reported outcome measures (PROMs). Addiction, 110, 1215-1216. doi:10.1111/add.12896
• Neale, J. & Strang, J. (2015b). Philosophical ruminations on measurement: methodological orientations of patient reported outcome measures (PROMS). Journal of Mental Health, 24, 123-125. doi:10.3109/0963823 7.2015.1036978
• Neale, J., Tompkins, C., Wheeler, C., Finch, E., Marsden, J., Mitcheson, L., ... Strang, J. (2015). “You’re all going to hate the word ‘recovery’ by the end of this”: Service users’ views of measuring addiction recovery. Drugs: Education, Prevention, and Policy, 22, 26-34. doi: 10.3109/09687637.2014.947564
• Nelson, E., Conger, B., Douglass, R., Gephart, D., Kirk, J., Page, R., … Zubkoff, M. (1983). Functional health status levels of primary care patients. Journal of the American Medical Association, 249, 3331-3338. doi:10.1001/jama.1983.03330480037027
• Ocloo, J. & Matthews, R. (2016). From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ Quality & Safety, 25, 626-632. doi:10.1136/bmjqs-2015-004839
• Pearson, A., White, H., Bath-Hextall, F., Salmond, S., Apostolo, J. & Kirkpatrick, P. (2015). A mixed-methods approach to systematic reviews. International Journal of Evidence-Based Healthcare, 13, 121-131. doi:10.1097/XEB.0000000000000052
• Pérez de los Cobos, J., Valero, S., Haro, G., Fidel, G., Escuder, G., Trujols, J. & Valderrama, J.C. (2002). Development and psychometric properties of the Verona Service Satisfaction Scale for methadonetreated opioid-dependent patients (VSSS-MT). Drug and Alcohol Dependence, 68, 209-214. doi:10.1016/ S0376-8716(02)00196-5
• Perreault, M., White, N.D., Fabrès, E., Landry, M., Anestin, A.S. & Rabouin, D. (2010). Relationship between perceived improvement and treatment satisfaction among clients of a methadone maintenance program. Evaluation and Program Planning, 33, 410-417. doi:10.1016/j.evalprogplan.2009.12.003
• Pluye, P. & Hong, Q.N. (2014). Combining the power of stories and the power of numbers: mixed methods research and mixed studies reviews. Annual Review of Public Health, 35, 29-45. doi:10.1146/annurev-publhealth-032013-182440
• Pope, C., Mays, N. & Popay, J. (2007). Synthesizing qualitative and quantitative health evidence: A guide to methods. Maidenhead: Open University Press.
• Pulford, J., Adams, P. & Sheridan, J. (2009). Client/ clinician discrepancies in perceived problem improvement and the potential influence on dropout response. International Journal of Mental Health and Addiction, 7, 497-505. doi:10.1007/s11469-007-9116-2
• Rademakers, J., Delnoij, D. & de Boer, D. (2011). Structure, process or outcome: which contributes most to patients’ overall assessment of healthcare quality? BMJ Quality & Safety, 20, 326-331. doi:10.1136/ bmjqs.2010.042358
• Rance, J. & Treloar, C. (2015). “We are people too”: consumer participation and the potential transformation of therapeutic relations within drug treatment. International Journal of Drug Policy, 26, 30-36. doi:10.1016/j.drugpo.2014.05.002
• Rat, A.C., Pouchot, J., Guillemin, F., Baumann, M., Retel-Rude, N., Spitz, E. & Coste, J. (2007). Content of quality-of-life instruments is affected by itemgeneration methods. International Journal of Quality in Health Care, 19, 390-398. doi:10.1093/intqhc/ mzm040
• Regnault, A., Balp, M.M., Kulich, K. & Viala-Danten, M. (2012). Validation of the Treatment Satisfaction Questionnaire for Medication in patients with cystic fibrosis. Journal of Cystic Fibrosis, 11, 494-501. doi:10.1016/j.jcf.2012.04.007
• Ries, R.K., Jaffe, C., Comtois, K.A. & Kitchell, M. (1999). Treatment satisfaction compared with outcome in severe dual disorders. Community Mental Health Journal, 35, 213-221. doi:10.1023/A:1018737201773
• Room, R. (2012). Who gets to define failure in regard to drug use and its treatment? Substance Use & Misuse, 47, 1373-1374. doi:10.3109/10826084.2012.723557
• Rose, D. (2009). Collaboration. Is collaborative research possible? A J. Wallcraft, B. Schrank & M. Amering (Eds.), Handbook of service user involvement in mental health research (pp. 169-179). Oxford: WileyBlackwell.
• Rose, D., Evans, J., Sweeney, A. & Wykes, T. (2011). A model for developing outcome measures from the perspectives of mental health service users. International Review of Psychiatry, 23, 41-46. doi:10.3109/0 9540261.2010.545990
• Sackett, D.L., Rosenberg, W.M., Gray, J.A., Haynes, R.B. & Richardson, W.S. (1996). Evidence based medicine: what it is and what it isn’t. British Medical Journal, 312, 71-72. doi:10.1136/bmj.312.7023.71
• Sacristán, J.A. (2013). Medicina basada en la evidencia y medicina centrada en el paciente: algunas reflexiones sobre su integración. Revista Clínica Española, 213, 460-464. doi:10.1016/j.rce.2013.05.014
• Sordo, L., Barrio, G., Bravo, M.J., Indave, B.I., Degenhardt, L., Wiessing, L., ... Pastor-Barriuso, R. (2017). Mortality risk during and after opioid substitution treatment: systematic review and meta-analysis of cohort studies. British Medical Journal, 357, j1550. doi:10.1136/bmj.j1550
• Staniszewska, S., Boardman, F., Gunn, L., Roberts, J., Clay, D., Seers, K., … O’Flynn, N. (2014). The Warwick Patient Experiences Framework: patient-based evidence in clinical guidelines. International Journal of Quality in Health Care, 26, 151-157. doi:10.1093/ intqhc/mzu003
• Staniszewska, S., Crowe, S., Badenoch, D., Edwards, C., Savage, J. & Norman, W. (2010). The PRIME project: developing a patient evidence-base. Health Expectations, 13, 312-322. doi:10.1111/j.1369-7625.2010. 00590.x
• Strain, E.C. & Stitzer, M.L. (Eds.) (2005). The treatment of opioid dependence. Baltimore, MD: Johns Hopkins University Press.
• Sweeney, A. & Morgan, L. (2009). The levels and stages of service user/survivor involvement in research. A J. Wallcraft, B. Schrank & M. Amering (Eds.), Handbook of service user involvement in mental health research (pp. 25-35). Oxford: Wiley-Blackwell.
• Tambuyzer, E. & Van Audenhove, C. (2015). Is perceived patient involvement in mental health care associated with satisfaction and empowerment? Health Expectations, 18, 516-526. doi:10.1111/hex.12052
• Terwee, C.B., Mokkink, L.B., Knol, D.L., Ostelo, R.W., Bouter, L.M. & de Vet, H.C. (2012). Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist. Quality of Life Research, 21, 651657. doi:10.1007/s11136-011-9960-1
• Tiffany, S.T., Friedman, L., Greenfield, S.F., Hasin, D.S. & Jackson, R. (2012). Beyond drug use: a systematic consideration of other outcomes in evaluations of treatments for substance use disorders. Addiction, 107, 709-718. doi:10.1111/j.1360-0443.2011.03581.x
• Torrens, M., Fonseca, F., Castillo, C. & Domingo-Salvany, A. (2013). Methadone maintenance treatment in Spain: the success of a harm reduction approach. Bulletin of the World Health Organization, 91, 136-141. doi:10.2471/BLT.12.111054
• Torrens, M., Fonseca, F., Galindo, L. & Farré, M. (2015). Opioid addiction: Shortand long-acting opioids. A N. el-Guebaly, G. Carrà & M. Galanter (Eds.), Textbook of addiction treatment: International perspectives (pp. 467-500). Milan: Springer.
• Treloar, C. & Holt, M. (2006). Deficit models and divergent philosophies: Service providers’ perspectives on barriers and incentives to drug treatment. Drugs: Education, Prevention and Policy, 13, 367-382. doi:10.1080/09687630600761444
• Trujols, J., Garijo, I., Siñol, N., del Pozo, J., Portella, M.J. & Pérez de los Cobos J. (2012). Patient satisfaction with methadone maintenance treatment: the relevance of participation in treatment and social functioning. Drug and Alcohol Dependence, 123, 41-47. doi:10.1016/j.drugalcdep.2011.10.014
• Trujols, J., Iraurgi, I., Batlle, F., Duran-Sindreu, S. & Pérez de los Cobos, J. (2015). Towards a genuinely user-centred evaluation of harm reduction and addiction treatment programmes: A further proposal. International Journal of Drug Policy, 26, 1285-1287. doi:10.1016/j.drugpo.2015.08.012
• Trujols, J., Iraurgi, I., Siñol, N., Portella, M.J., Pérez, V. & Pérez de los Cobos, J. (2012). Satisfaction with methadone as a medication: psychometric properties of the Spanish version of the Treatment Satisfaction Questionnaire for Medication. Journal of Clinical Psychopharmacology, 32, 69-74. doi:10.1097/ JCP.0b013e3182401e09
• Trujols, J., Portella, M.J., Iraurgi, I., Campins, M.J., Siñol, N. & Pérez de los Cobos, J. (2013). Patient-reported outcome measures: are they patient-generated, patient-centred or patient-valued? Journal of Mental Health, 22, 555-562. doi:10.3109/09638237. 2012.734653
• Trujols, J., Salazar, J.I. & Salazar, I. (1999). Los usuarios de drogas como ciudadanos: Los programas de reducción de daños. A E. Becoña, A. Rodríguez & I. Salazar (Eds.), Drogodependencias V. Avances (pp. 343378). Santiago de Compostela: Universidade de Santiago de Compostela.
• Trujols, J., Siñol, N., Iraurgi, I., Batlle, F., Guàrdia, J. & Pérez de los Cobos, J. (2011). Patient and clinician’s ratings of improvement in methadone-maintained patients: Differing perspectives? Harm Reduction Journal, 8, 23. doi:10.1186/1477-7517-8-23
• Trujols, J., Siñol, N. & Pérez de los Cobos, J. (2010). Methadone maintenance treatment: the need to distinguish between holding dose, dose adequacy, satisfaction with methadone as a medication, and satisfaction with treatment. Journal of Clinical Psychopharmacology, 30, 95-96. doi:10.1097/JCP.0b013e 3181c8b439
• Urbanoski, K.A., Rush, B.R., Wild, T.C., Bassani, D.G. & Castel, S. (2007). Use of mental health care services by Canadians with co-occurring substance dependence and mental disorders. Psychiatric Services, 58, 962-969. doi:10.1176/ps.2007.58.7.962
• Vanderplasschen, W., Naert, J., Vander Laenen, F. & De Maeyer, J. (2015). Treatment satisfaction and quality of support in outpatient substitution treatment: opiate users’ experiences and perspectives. Drugs: Education, Prevention and Policy, 22, 272-280. doi:10. 3109/09687637.2014.981508
• Vayena, E., Brownsword, R., Edwards, S.J., Greshake, B., Kahn, J.P., Ladher, N., … Tasioulas, J. (2016). Research led by participants: a new social contract for a new kind of research. Journal of Medical Ethics, 42, 216-219. doi:10.1136/medethics-2015-102663
• Vermersch, P., Hobart, J., Dive-Pouletty, C., Bozzi, S., Hass, S. & Coyle, P.K. (2017). Measuring treatment satisfaction in MS: Is the Treatment Satisfaction Questionnaire for Medication fit for purpose? Multiple Sclerosis Journal, 23, 604-613. doi:10.1177/135245 8516657441
• Vogel, M., Nordt, C., Dürsteler, K.M., Lang, U.E., Seifritz, E., Krausz, M. & Herdener, M. (2016). Evaluation of medication-assisted treatment of opioid dependence-The physicians’ perspective. Drug and Alcohol Dependence, 164, 106-112. doi:10.1016/j.drugalcdep.2016.04.039
• Ward, J., Mattick, R.P. & Hall, W. (Eds.) (1998). Methadone maintenance treatment and other opioid replacement therapies. Amsterdam: Harwood Academic.
• Weiss, I., Rabinowitz, J. & Spiro, S. (1996). Agreement between therapists and clients in evaluating therapy and its outcomes: Literature review. Administration and Policy in Mental Health, 23, 493-511. doi:10.1007/ BF02108686
• Wicks, P. (2014). Could digital patient communities be the launch pad for patient-centric trial design? Trials, 15, 172. doi:10.1186/1745-6215-15-172
• Wicks, P., Heywood, B. & Heywood, J. (2013). Online platform to accelerate patient involvement in open instrument development. Quality of Life Research, 22(Supl. 1), 55. doi:10.1007/s11136-013-0543-1
• Williams, I. & Glasby, J. (2010). Making ‘what works’ work: The use of knowledge in UK health and social care decision-making. Policy and Society, 29, 95-102. doi:10.1016/j.polsoc.2010.03.002
• Young, B. & Bagley, H. (2016). Including patients in core outcome set development: issues to consider based on three workshops with around 100 international delegates. Research Involvement and Engagement, 2, 25. doi:10.1186/s40900-016-0039-6