Effectiveness of teleassistance at improving quality of life in people with neuromuscular diseases

  1. Martínez, Óscar 2
  2. Jometón, Amaia 2
  3. Pérez Álvarez, Manuel 2
  4. Lázaro Pérez, Esther 2
  5. Amayra Caro, Imanol 2
  6. López Paz, Juan Francisco 2
  7. Oliva Macías, Mireia 2
  8. Parada Fernández, Pamela 2
  9. Berrocoso Cascallana, Sarah 2
  10. Iglesias, Andrea 2
  11. Caballero, Patricia 2
  12. Nicolás Martínez, Luis de 2
  13. Bárcena, José Eulalio 1
  1. 1 Hospital Universitario de Cruces
    info

    Hospital Universitario de Cruces

    Barakaldo, España

    ROR https://ror.org/03nzegx43

  2. 2 Universidad de Deusto
    info

    Universidad de Deusto

    Bilbao, España

    ROR https://ror.org/00ne6sr39

Revista:
The Spanish Journal of Psychology

ISSN: 1138-7416

Año de publicación: 2014

Volumen: 17

Páginas: 1-9

Tipo: Artículo

DOI: 10.1017/SJP.2014.89 DIALNET GOOGLE SCHOLAR lock_openAcceso abierto editor

Otras publicaciones en: The Spanish Journal of Psychology

Resumen

Rare neuromuscular diseases (NDs) are a group of inherited or acquired neurological pathologies affecting the muscles and the nervous system. Their low prevalence and high geographical dispersion can cause isolation and difficulties in social interaction between affected equals. New technologies, such as videoconferencing, offer a complementary option for improving the health of this population. The purpose of this study was to assess the effectiveness of a teleassistance program at improving health-related quality of life (HRQoL) through social interaction in adults with NDs. The sample consisted of 45 participants affected by rare NDs. Twenty-four participants were assigned to the experimental group (EG), which participated in the videoconferencing sessions, and 21 to the control group. Three questionnaires were administered: WHO-DAS II, Sickness Impact Profile, and SF-36 Health Survey. Effectiveness was assessed by a pre-post design. An online psychosocial program was applied over three-month period. Data revealed an improvement of the EG in psychosocial variables, e.g. �Getting along with people� (z = �2.289, r = �.47, p = .05) or �Psychosocial Domain� (z = �2.404, r = �.49, p = .05), and in physical variables, e.g. �Life activities� (z = �2.844, r = �.58, p = .05). Social interaction appeared as a relevant factor at improving HRQoL levels. High levels of satisfaction about the teleassistance program were reported.

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