Una aproximación cualitativa a los factores de resiliencia en familiares de personas con discapacidad intelectual en España

Referències bibliogràfiques

• Alberdi, P., Escario, P., Los hombres jóvenes y la paternidad (2007) Estudios Demográficos y Urbanos, 24 (1), pp. 267-272. , http://www.jstor.org/stable/25614199, Disponible en:
• Baer, R.A., Smith, G.T., Hopkins, J., Krietemeyer, J., Toney, L., Using self-report assessment methods to explore facets of mindfulness (2006) Assessment, 13 (1), pp. 27-45
• Baer, R.A., Lykins, E.L., Peters, J.R., Mindfulness and self-compassion as predictors of psychological wellbeing in long-term meditators and matched nonmeditators (2012) The Journal of Positive Psychology, 7 (3), pp. 230-238
• Barnard, L.K., Curry, J.F., Self-compassion: Conceptualizations, correlates, & interventions (2011) Review of General Psychology, 15 (4), pp. 289-304
• Bayrakli, H., Kaner, S., Investigating the factors affecting resiliency in mothers of children with and without intellectual disability (2012) Educational Sciences: Theory and Practice, 12 (2), pp. 936-943
• Bazzano, A., Wolfe, C., Zylowska, L., Wang, S., Schuster, E., Barrett, C., Mindfulness based stress reduction (MBSR) for parents and caregivers of individuals with developmental disabilities: A community-based approach (2015) Journal of Child and Family Studies, 24 (2), pp. 298-308
• Bekhet, A.K., Johnson, N.L., Zauszniewski, J.A., Resilience in family members of persons with autism spectrum disorder: A review of the literature (2012) Issues in Mental Health Nursing, 33 (10), pp. 650-656
• Blacher, J., Sequential stages of parent adjustment to the birth of a child with handicaps: Facts or artifact? (1984) Mental Retardation, 22, pp. 55-68
• Blacher, J., Baker, B.L., Positive impact of intellectual disability on families (2007) American Journal on Mental Retardation, 112 (5), pp. 330-348
• Blackledge, J.T., Hayes, S.C., Using acceptance and commitment training in the support of parents of children diagnosed with autism (2006) Child & Family Behavior Therapy, 28 (1), pp. 1-18
• Burke, M.M., Fish, T., Lawton, K., A comparative analysis of adult siblings’ perceptions toward caregiving (2015) Intellectual and Developmental Disabilities, 53 (2), pp. 143-157
• Chadwick, D.D., Mannan, H., Garcia Iriarte, E., McConkey, R., O'Brien, P., Finlay, F., Family voices: Life for family carers of people with intellectual disabilities in Ireland (2013) Journal of Applied Research in Intellectual Disabilities, 26 (2), pp. 119-132
• Chou, Y.C., Pu, C.Y., Kröger, T., Fu, L.Y., Caring, employment, and quality of life: Comparison of employed and nonemployed mothers of adults with intellectual disability (2010) American Journal on Intellectual and Developmental Disabilities, 115 (5), pp. 406-420
• Clauss-Ehlers, C.S., Sociocultural factors, resilience, and coping: Support for a culturally sensitive measure of resilience (2008) Journal of Applied Developmental Psychology, 29 (3), pp. 197-212
• Dillenburger, K., McKerr, L., ‘How long are we able to go on?’ Issues faced by older family caregivers of adults with disabilities (2011) British Journal of Learning Disabilities, 39 (1), pp. 29-38
• Dykens, E.M., Toward a positive psychology of mental retardation (2006) American Journal of Orthopsychiatry, 76 (2), pp. 185-193
• Eisenhower, A., Blacher, J., Mothers of young adults with intellectual disability: Multiple roles, ethnicity and well-being (2006) Journal of Intellectual Disability Research, 50 (12), pp. 905-916
• Ekas, N.V., Lickenbrock, D.M., Whitman, T.L., Optimism, social support, and well-being in mothers of children with autism spectrum disorder (2010) Journal of Autism and Developmental Disorders, 40 (10), pp. 1274-1284
• Evans, D., Strnadová, I., Examining the range of strategies mothers use to cope when caring for a child with an intellectual disability (2008) Communities and change: Selected papers, pp. 141-164. , D. Bottrell G. Meagher Sydney University Press Sydney
• FEAPS, (2015), www.feaps.org/archivo/centrodocumental/doc_download/548-.html, Informe sobre «El sobreesfuerzo económico que la discapacidad intelectual o de desarrollo ocasiona en la familia en España 2014 [consultado 20 Ene 2016]. Disponible en:
• Frey, K.S., Greenberg, M.T., Fewell, R.R., Stress and coping among parents of handicapped children: A multidimensional approach (1989) American Journal on Mental Retardation, 94, pp. 240-249
• Fundación, A., (2016), http://www.fundacionadecco.es/_data/SalaPrensa/Estudios/pdf/604.pdf, Discapacidad y familia [consultado 20 Ene 2016]. Disponible en:
• Germer, C.K., The mindful path to self-compassion: Freeing yourself from destructive thoughts and emotions (2009), Guilford Press New York
• Grant, G., Ramcharan, P., Flynn, M., Resilience in families with children and adult members with intellectual disabilities (2007) Journal of Applied Research in Intellectual Disabilities, 20, pp. 563-575
• Hebert, R.S., Weinstein, E., Martire, L.M., Schulz, R., Religion, spirituality and the well-being of informal caregivers: A review, critique, and research prospectus (2006) Aging & Mental Health, 10 (5), pp. 497-520
• Heiman, T., Parents of children with disabilities: Resilience, coping and future expectations (2002) Journal of Developmental and Physical Disabilities, 14 (2), pp. 159-171. , doi:1056-263X/02/0600-0159/0
• Heywood, J., Childhood disability: Ordinary lives for extraordinary families (2010) Community Practitioner, 83 (4), pp. 19-22. , http://search.proquest.com/docview/213399529?accountid=14529, Disponible en:
• Hofstede, G., Culture and organizations (1980) International Studies of Management & Organization, 10 (4), pp. 15-41
• (2009), http://www.ine.es/revistas/cifraine/1009.pdf, Panorámica de la discapacidad en España [consultado 20 Ene 2016]. Disponible en:
• Kim, H.W., Greenberg, J.S., Seltzer, M.M., Krauss, M.W., The role of coping in maintaining the psychological well-being of mothers of adults with intellectual disability and mental illness (2003) Journal of Intellectual Disability Research, 47 (4-5), pp. 313-327
• Las Hayas, C., López de Arroyabe, E., Calvete, E., Resilience in family caregivers of persons with acquired brain injury (2015) Rehabilitation Psychology, 60 (3), pp. 295-302
• Lazarus, R.S., Kanner, A.D., Folkman, S., Emotions: A cognitive phenomenological analysis (1980) Theories of Emotion, 1, pp. 189-217
• Li-Tsang, C.W.P., Yau, M.K.S., Yuen, H.K., Success in parenting children with developmental disabilities: Some characteristics, attitudes and adaptive coping skills (2001) The British Journal of Development Disabilities, 47 (93), pp. 61-71
• Lincoln, Y.S., Guba, E.G., Naturalistic inquiry (1985), Sage Newbury Park
• Lizasoáin, O., Onieva, C.E., Un Estudio sobre la fratría ante la discapacidad intelectual (2010) Psychosocial Intervention, 19 (1), pp. 89-99
• Lloyd, T., Hastings, R.P., Psychological variables as correlates of adjustment in mothers of children with intellectual disabilities: Cross-sectional and longitudinal relationships (2008) Journal of Intellectual Disability Research, 52 (1), pp. 37-48
• Lloyd, T., Hastings, R.P., Hope as a psychological resilience factor in mothers and fathers of children with intellectual disabilities (2009) Journal of Intellectual Disability Research, 53 (12), pp. 957-968
• Losada, A., Robinson Shurgot, G., Knightc, B.G., Marquez, M., Montorio, I., Izal, M., Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers (2006) Aging & Mental Health, 10 (1), pp. 69-76
• Lunsky, Y., Robinson, S., Reid, M., Palucka, A., Development of a mindfulness-based coping with stress group for parents of adolescents and adults with developmental disabilities (2015) Mindfulness, 6 (6), pp. 1335-1344
• Luthar, S.S., Cicchetti, D., Becker, B., The construct of resilience: A critical evaluation and guidelines for future work (2000) Child Development, 71, pp. 543-562
• Mactavish, J.B., MacKay, K.J., Iwasaki, Y., Betteridge, D., Family caregivers of individuals with intellectual disability: Perspectives on life quality and the role of vacations (2007) Journal of Leisure Research, 39 (1), pp. 127-155
• Mailick Seltzer, M., Greenberg, J.S., Floyd, F.J., Pettee, Y., Hong, J., Life course impacts of parenting a child with a disability (2001) American Journal on Mental Retardation, 106 (3), pp. 265-286
• Márquez-González, M., López, J., Romero-Moreno, R., Losada, A., Anger, spiritual meaning and support from the religious community in dementia caregiving (2012) Journal of Religion and Health, 51, pp. 179-186
• McDonald, E.E., Hastings, R.P., Mindful parenting and care involvement of fathers of children with intellectual disabilities (2010) Journal of Child and Family Studies, 19 (2), pp. 236-240
• Migerode, F., Maes, B., Buysse, A., Brondeel, R., Quality of life in adolescents with a disability and their parents: The mediating role of social support and resilience (2012) Journal of Developmental and Physical Disabilities, 24 (5), pp. 487-503
• Miller, A.C., Gordon, R.M., Daniele, R.J., Diller, L., Stress, appraisal, and coping in mothers of disabled and nondisabled children (1992) Journal of Pediatric Psychology, 17 (5), pp. 587-605
• Moreira, H., Gouveia, M.J., Carona, C., Silva, N., Canavarro, M.C., Maternal attachment and children's quality of life: The mediating role of self-compassion and parenting stress (2015) Journal of Child and Family Studies, 24, pp. 2332-2344
• Muir, K., Strnadová, I., Whose responsibility? Resilience in families of children with developmental disabilities (2014) Disability & Society, 29 (6), pp. 922-937
• Neff, K.D., Self-compassion: An alternative conceptualization of a healthy attitude toward oneself (2003) Self and Identity, 2, pp. 85-102
• Neff, K.D., Faso, D.J., Self-compassion and well-being in parents of children with autism (2015) Mindfulness, 6 (4), pp. 938-947
• Olsson, M.B., Hwang, C.P., Depression in mothers and fathers of children with intellectual disability (2001) Journal of Intellectual Disability Research, 45 (6), pp. 535-543
• Olsson, M.B., Hwang, C.P., Well-being, involvement in paid work and division of child-care in parents of children with intellectual disabilities in Sweden (2006) Journal of Intellectual Disability Research, 50 (12), pp. 963-969
• Peer, J.W., Hillman, S.B., Stress and resilience for parents of children with intellectual and developmental disabilities (2014) Journal of Policy and Practice in Intellectual Disabilities, 11 (2), pp. 92-98
• Peralta, F., Arellano, A., Familia y discapacidad: una perspectiva teórico-aplicada del enfoque centrado en la familia para promover la autodeterminación (2010) Electronic Journal of Research in Educational Psychology, 8 (3), pp. 1339-1362. , http://www.redalyc.org/pdf/2931/293122000018.pdf, Disponible en:
• Perera, B.D., Standen, P.J., Exploring coping strategies of carers looking after people with intellectual disabilities and dementia (2014) Advances in Mental Health and Intellectual Disabilities, 8 (5), pp. 292-301
• Piazza, V.E., Floyd, F.J., Mailick, M.R., Greenberg, J.S., Coping and psychological health of aging parents of adult children with developmental disabilities (2014) American Journal on Intellectual and Developmental Disabilities, 119 (2), pp. 186-198
• Pillay, D., Girdler, S., Collins, M., Leonard, H., ‘It's not what you were expecting, but it's still a beautiful journey’: The experience of mothers of children with Down syndrome (2012) Disability and Rehabilitation, 34 (18), pp. 1501-1510
• Pinquart, M., Sörensen, S., Differences between caregivers and non caregivers in psychological health and physical health: A meta-analysis (2003) Psychology and Aging, 18 (2), pp. 250-267
• Rolland, J.S., Walsh, F., Facilitating family resilience with childhood illness and disability (2006) Current Opinion in Pediatrics, 18 (5), pp. 527-538
• Sánchez-Teruel, D., Robles-Bello, M.A., Respuesta a un programa de resiliencia aplicado a padres de niños con síndrome de Down (2015) Universitas Psychologica, 14 (2), pp. 645-658
• Savage, S., Bailey, S., The impact of caring on caregivers’ mental health: A review of the literature (2004) Australian Health Review, 27 (1), pp. 111-117
• Segal, Z.V., Williams, J.M.G., Teasdale, J.D., Kabat-Zinn, J., The mindful way through depression (2010) Bulletin of the Menninger Clinic, 74 (3), pp. 249-252. , doi:abs101521bumc2010743249
• Singh, N.N., Lancioni, G.E., Winton, A.S., Singh, J., Curtis, W.J., Wahler, R.G., Mindful parenting decreases aggression and increases social behavior in children with developmental disabilities (2007) Behavior Modification, 31 (6), pp. 749-771
• Strauss, A., Corbin, J., Basics of qualitative research (1998), Sage Thousand Oaks
• Summers, J.A., Behr, S.K., Turnbull, A.P., Positive adaptation and coping strengths of families who have children with disabilities (1988) Support for caregiving families: Enabling positive adaptation to disability, pp. 27-40. , G.H.S. Singer L.K. Irvin Brookes Baltimore
• Taanila, A., Syrjälä, L., Kokkonen, J., Järvelin, M.R., Coping of parents with physically and/or intellectually disabled children (2002) Child: Care, Health and Development, 28, pp. 73-86
• Trute, B., Hauch, C., Building on family strength: A study of families with positive adjustment to the birth of a developmentally disabled child (1988) Journal of Marital and Family Therapy, 14 (2), pp. 185-193
• Turnbull, A.P., Turnbull, H.R., Families, professionals, and exceptionality: A special partnership (1990), Merrill Pub. Co Columbus
• Walsh, F., Family resilience: A framework for clinical practice (2003) Family Process, 42 (1), pp. 1-18
• Windle, G., What is resilience? A review and concept analysis (2011) Clinical Gerontology, 21 (2), pp. 152-169
• Wong, P.K.S., Fong, K.W., Lam, T.L., Enhancing the resilience of parents of adults with intellectual disabilities through volunteering: An exploratory study (2015) Journal of Policy and Practice in Intellectual Disabilities, 12 (1), pp. 20-26
• Yau, M.K.S., Li-Tsang, C.W., Adjustment and adaptation in parents of children with developmental disability in two-parent families (1999) The British Journal of Development Disabilities, 45 (88), pp. 38-51