Bones pràctiques en l'atenció socioeducativa amb les persones amb TEAuna aproximació a les necessitats formatives professionals

  1. Gezuraga Amundarain, Monike 1
  2. Darretxe Urrutxi, Leire 1
  3. Legorburu Fernández, Idoia 1
  4. Sanz Esparza, Zuriñe 2
  5. Izagirre Oyanarte, Kattalin 1
  1. 1 Universidad del País Vasco (UPV-EHU)
  2. 2 Asociación de familias de personas afectadas de Trastorno del Espectro Autista
Revista:
Educació social: Revista d'intervenció sòcioeducativa

ISSN: 2339-6954 1135-085X

Any de publicació: 2020

Títol de l'exemplar: Competències, formació i bones pràctiques dels professionals de l’acció socioeducativa

Número: 76

Pàgines: 57-82

Tipus: Article

Altres publicacions en: Educació social: Revista d'intervenció sòcioeducativa

Resum

Presentem un estudi de cas en el qual es dona protagonisme a dues persones amb trastorn de l'espectre autista (TEA), un familiar i diversos professionals d'una associació de referència (APNABI). Els professionals que treballen amb persones amb TEA i les seves famílies han d'oferir una resposta adaptada a les diverses necessitats que presenten aquestes persones durant tot el seu cicle vital. Aquest article té un doble objectiu: primer, cerca aclarir el que es considera una bona pràctica en relació amb el TEA i, segon, pretén aportar algunes recomanacions per a la formació de professionals que treballen en aquest àmbit. Durant la investigació s'ha realitzat una revisió de la literatura sobre la definició de bones pràctiques en relació amb el TEA i una anàlisi de tota la informació recollida a través de tres entrevistes i un grup de discussió. Mitjançant aquestes eines s'han identificat diversos elements clau per a considerar en la formació dels professionals d'aquest àmbit.

Referències bibliogràfiques

  • Anagnostou, E.; Zwaigenbaum, L.; Szatmari, P.; Fombonne, E.; Fernandez, B. A.; Woodbury-Smith. M. i Scherer, S. W. (2014). Autism spectrum disorder: Advances in evidence-based practice. Canadian Medical Association Journal, 186(7), p. 509-519.
  • APA (2014). Guía de consulta de los criterios diagnósticos del DSM-V. London: American Psychiatric Association.
  • Barnhill, G.; Polloway, E.i Sumutka, B. (2011). A survey of personnel preparation practices in autism spectrum disorders. Focus on Autism and other Developmental Disabilities, 26 (2), p. 75-86.
  • Bent, C. A.; Barbaro, J. i Dissanayake, C. (2020). Parents' experiences of the service pathway to an autism diagnosis for their child: What predicts an early diagnosis in Australia? Research in Developmental Disabilities, 103, 103689. doi: 10.1016/j.ridd.2020.103689
  • Bolivar, A. (2005). El lugar de la ética profesional en la formación universitaria. Revista Mexicana de Investigación Educativa, 10(24), p. 93-123.
  • Breitenbach, M. M.; Armstrong, V. L. i Bryson, S. E. (2013). The implementation of best education practices for a student severely affected by autism. International Journal of Inclusive Education, 17(3), p. 277-294.
  • Charman, T.; Pelicano, L.; Peacy, L.V.; Peacy, N.; Forward, K. i Dockrell, J. (2011). ¿Qué es una buena práctica en la educación de personas con autismo? AETAPI, CRAE. Recuperado de: http://aetapi. org/download/una-buena-practicala-educacion-personas-autismo.
  • Combes, B. H.; Chang, M.; Austin, J. E. i Hayes, D. (2016). The use of evidenced-based practices in the provision of social skills training for students with autism spectrum disorder among school psychologists. Psychology in the Schools, 53(5), p. 548-563.
  • Confederación Autismo España. (2015). Estrategia Española sobre Trastornos del Espectro del Autismo. Madrid: Ministerio de Sanidad, Servicios Sociales e Igualdad.
  • Corona, L. L.; Fox, S. A.; Christodulu, K. V. i Worlock, J. A. (2016). Providing education on sexuality and relationships to adolescents with autism spectrum disorder and their parents. Sexuality and Disability, 34(2), p. 199-214.
  • D'Agostino, S. R. i Douglas, S. N. (2020). Early Childhood Educators' Perceptions of Inclusion for Children with Autism Spectrum Disorder. Early Childhood Education Journal, p.1-13. doi: 10.1007/s10643-020-01108-7
  • Detrich, R. (2008). Evidence-based, empirically supported, or best practice? a guide for the scientist-practitioner, en Luiselli, J. K., Russo, D. C., Christian, W. P. i Wilczynski. S.N (Eds.): Effective practices for children with autism. Educational and behavioral support interventions that work. New York: Oxford University press.
  • Dillenburger, K.; Mckerr, L. i Jordan, J. (2014). Lost in translation: Public policies, evidence-based practice, and autism spectrum disorder. International Journal of Disability Development and Education, 61(2), p. 134-151.
  • Dillenburger, K.; Mckerr, L.; Jordan, J. i Keenan, M. (2016). Staff training in autism: The one-eyed Wo/Man. International Journal of Environmental Research and Public Health, 13(7).
  • Edmond, T.; Megivern, D.; Willians, C.; Rochman, E. i Howard, M. (2006). Integrating evidence-based practice and social work field education. Journal of Social Work Education, 42 (2), p. 388-396.
  • Eikeseth, S. (2010). Examination of qualifications required of an EIBI profesional. European Journal of Behavior Analysis, 11, p. 239–246.
  • Fernandes, L. C.; Gillberg, C. I.; Cederlund, M.; Hagberg, B.; Gillberg, C. i Billstedt, E. (2016). Aspects of sexuality in adolescents and adults diagnosed with autism spectrum disorders in childhood, Journal of Autism and Developmental Disorders, 46(9), p. 3155-3165.
  • Guareschi, T.; Alves, M. D. i Naujorks, M. I. (2016). Autism and public policies for inclusion in Brazil. Journal of Research in Special Educational Needs, 16, p. 246-250.
  • Gunn, K. C. M. i Delafield-Butt, J. T. (2016). Teaching children with autism spectrum disorder with restricted interests: A review of evidence for best practice. Review of Educational Research, 86(2), p. 408-430.
  • Harper, A.; Dyches, T. T.; Harper, J.; Roper, S. O. i South, M. (2013). Respite care, marital quality, and stress in parents of children with autism spectrum disorders. Journal of autism and developmental disorders, 43(11), p. 2604-2616.
  • Havlicek, J.; Bilaver, L. i Beldon, M. (2016). Barriers and facilitators of the transition to adulthood for foster youth with autism spectrum disorder: Perspectives of service providers in Illinois. Children and Youth Services Review, 60, p. 119-128.
  • Hodgetts, S.; Zwaigenbaum, L. i Nicholas, D. (2015). Profile and predictors of service needs for families of children with autism spectrum disorders. Autism, 19(6), p. 673-683.
  • Hoffer, K. (2011). Critical Best Practice perspective of social work- service centre for elderly people. Interuniversitary Centre Dubronik: Course Social Works Theories and methodologies.
  • Hong Chui, W. i Wilson, W. (Ed.). (2007). Social Works and human services best practice. Sydney: Federation Press.
  • Hong, E. R.; Ganz, J. B.; Ninci, J.; Neely, L.; Gilliland, W. i Boles, M. (2015). An evaluation of the quality of research on evidence-based practices for daily living skills for individuals with autism spectrum disorder, Journal of Autism and Developmental Disorders, 45(9), p. 2792-2815.
  • Iovannone, R.; Dunlap, G.; Huber, H. i Kinkaid, D. (2003). Effective educational practices for students with autism spectrum disorders. Focus on Autism and other Developmental Disabilities, 18, p. 150-165.
  • Ip, H. H. S.; Wong, S. W. L.; Chan, D. F. Y.; Byrne, J.; Chen Li, Yuan, V. S. N. i Wong, J. Y. W. (2016). Virtual reality enabled training for social adaptation in inclusive education settings for school-aged children with autism spectrum disorder (ASD). Blended Learning. Aligning Theory with Practices.9th International Conference, ICBL. Proceedings: LNCS 9757, 94; 2016, p. 94-102.
  • Jarvis, P. (2004). Adult education and lifelong learning: Theory and practice. London: Routledge-Falmer.
  • Johnson, L. D.; Fleury, V.; Ford, A.; Rudolph, B. i Young, K. (2018). Translating Evidence-Based Practices to Usable Interventions for Young Children With Autism. Journal of Early Intervention, 40(2), p. 158-176. doi: 10.1177/1053815117748410
  • Kasner, M.; Reid, G. i Macdonald, C. (2012). Evidence-based practice: Quality indicator analysis of antecedent exercise in autism spectrum disorders. Research in Autism Spectrum Disorders, 6(4), p. 1418-1425.
  • Kitzerow, J.; Wilker, C.; Teufel, K.; Soll, S.; Schneider, M. i Westerwald, E. (…) Freitag, C. M. (2014). Frankfurt early intervention program (FFIP) for preschoolers with autism spectrum disorders (ASD). First results for language development. Kindheit Und Entwicklung, 23(1), p. 34-41.
  • Hume, K.; Steinbrenner, J. R.; Odom, S. L.; Morin, K. L.; Nowell, S. W.; Tomaszewski, B. (...) i Savage, M. N. (2021). Evidence-Based Practices for Children, Youth, and Young Adults with Autism: Third Generation Review. Journal of Autism and Developmental Disorders. doi: 10.1007/s10803-020-04844-2
  • Knight, V.; Sartini, E. i Spriggs, A. D. (2015). Evaluating visual activity schedules as evidence-based practice for individuals with autism spectrum disorders. Journal of Autism and Developmental Disorders, 45(1), p. 157-178.
  • Koegel, L.; Matos-Fredeen, R.; Lang, R.; Koegel, R. (2012). Interventions for Children With Autism Spectrum Disorders in Inclusive School Settings. Cognitive and Behavioral Practice, 19(3), p. 401-412.
  • Kuhlthau, K. A.; Delahaye, J.; Erickson-Warfield, M.; Shui, A.; Crossman, M.; Van Der Weerd, E. (2016). Health care transition services for youth with autism spectrum disorders: Perspectives of caregivers. Pediatrics, 137, p. S158-S166.
  • Leigh, J. P.; Grosse, S. D.; Cassady, D.; Melnikow, J. i Hertz-Picciotto, I. (2016). Spending by California's department of developmental services for persons with autism across demographic and expenditure categories. Plos One, 11(3), e0151970.
  • Lubas, M.; Mitchell, J. i De Leo, G. (2016). Evidence-based practice for teachers of children with autism: A dynamic approach. Intervention in School and Clinic, 51(3), p. 188-193.
  • Luddeckens, J. (2020). Approaches to Inclusion and Social Participation in School for Adolescents with Autism Spectrum Conditions (ASC)-a Systematic Research Review. Review Journal of Autism and Developmental Disorders. doi: 10.1007/s40489-020-00209-8
  • MacKenzie, A. (2018). Prejudicial stereotypes and testimonial injustice: Autism, sexuality and sex education. International Journal of Educational Research, 89, p. 110-118. doi:10.1016/j.ijer.2017.10.007
  • Majoko, T. (2016). Inclusion of children with autism spectrum disorders: Listening and hearing to voices from the grassroots. Journal of Autism and Developmental Disorders, 46(4), p. 1429-1440.
  • Marsack-Topolewski, C. N. (2020). Parental caregivers' use of support networks for adults with autism by educational status. Journal of Family Social Work. doi: 10.1080/10522158.2020.1777239
  • Martos-Pérez, J. i Llorente-Comi, M. (2013). Treatment of autism spectrum disorders: Union between understanding and evidence-based practice. Revista de Neurología, 57, p. S185-S191.
  • May, T.; Mcginley, J.; Murphy, A.; Hinkley, T.; Papadopoulos, N.; Williams, K. J. i Rinehart, N. J. (2016). A multidisciplinary perspective on motor impairment as an early behavioural marker in children with autism spectrum disorder. Australian Psychologist, 51(4), p. 296-303.
  • Mckenzie, K.; Rutherford, M.; Forsyth, K.; O'hare, A.; Mcclure, I.; Murray, A. L. i Irvine, L. (2016). The relation between practice that is consistent with NICE guideline 142 recommendations and waiting times within autism spectrum disorder diagnostic services. Research in Autism Spectrum Disorders, 26, p. 10-15.
  • Mcleod, B. D.; Wood, J. J. i Klebanoff, S. (2015). Advances in evidence-based intervention and assessment practices for youth with an autism spectrum disorder. Behavior Therapy, 46(1), p. 1-6.
  • McNeill, J. (2019). Social Validity and Teachers' Use of Evidence-Based Practices for Autism. Journal of Autism and Developmental Disorders, 49(11), p. 4585-4594. doi:10.1007/s10803-019-04190-y
  • Meindl, J. N.; Delgado, D. i Casey, L. B. (2020). Increasing engagement in students with autism in inclusion classrooms. Children and Youth Services Review, 111, 104854. doi: 10.1016/j.childyouth.2020.104854
  • Moon, J. (2004). A Handbook of Reflective and Experiential Learning: Theory and Practice. London: Routledge-Falmer.
  • Morin, K. L.; Sam, A.; Tomaszewski, B.; Waters, V. i Odom, S. L. (2020). Knowledge of Evidence-Based Practices and Frequency of Selection Among School-Based Professionals of Students With Autism. Journal of Special Education, 0022466920958688. doi: 10.1177/0022466920958688
  • Mulas, F. et al. (2010). Modelos de intervención en niños con autismo. Revista de Neurología, 50, p. 577-584.
  • Naciones Unidas (2008). Resolución aprobada por la Asamblea General el 18 de diciembre de 2007, 62/139. Día de Concienciación sobre el Autismo, del 21 de enero de 2008.
  • Naciones Unidas. (2006). Convención sobre los derechos de las personas con discapacidad. Nueva York: Naciones Unidas.
  • Naciones Unidas- (1948). Declaración Universal de los Derechos Humanos. París: Naciones Unidas.
  • Nunes, D. R. P. i Schmidt, C. (2019). Special Education and Autism: from Evidence-Based Practices to School. Cadernos De Pesquisa, 49(173), p. 84-103. doi: 10.1590/198053145494
  • Odom, S. L.; Collet-Klingenberg, L.; Rogers, S. J. i Hatton, D. D. (2010). Evidence-based practices in interventions for children and youth with autism spectrum disorders. Preventing school failure: Alternative education for children and youth, 54(4), p. 275-282.
  • Odom, S. L.; Cox, A. i Brock, M. (2013). Implementation science, professional development, and autism spectrum disorders. Exceptional Children, 79, p. 233-251.
  • Parrilla, A. (2010). Ética para una investigación inclusiva. Revista Educación Inclusiva, 3(1), p. 165-174.
  • Peydró, S. i Rodríguez, V. (2007). El autismo en el siglo XXI. Recomendaciones educativas basadas en evidencia. Siglo Cero, 38(2), p. 75-94.
  • Powers, M. D. (2006). Niños autistas. Una guía para padres, terapeutas y educadores. Sevilla: Editorial Trillas.
  • Roberts, J. i Simpson, K. (2016). Inclusive education for students with autism: A review of stakeholder perspectives, Journal of Intellectual Disability Research, 60(7-8), p. 807-807.
  • Rue, H. C. i Knox, M. (2013). Capacity building: Evidence-based practice and adolescents on the autism spectrum. Psychology in the Schools, 50(9), p. 947-956.
  • Schön, D. (1992). La formación de profesionales reflexivos: hacia un nuevo diseño de la enseñanza y el aprendizaje en las profesiones. Barcelona: Paidós.
  • Shattuck, P. T.; Roux, A. M.; Hudson, L. E.; Taylor, J. L.; Maenner, M. J. i Trani, J. (2012). Services for adults with an autism spectrum disorder. Canadian Journal of Psychiatry-Revue Canadienne De Psychiatrie, 57(5), p. 284-291.
  • Sparks, D. (2002). Designing Powerful Professional Development for Teachers and Principals. Oxford: National Staff Development Council.
  • Sparrow, S. S.; Cicchetti, D. V. i Balla, D. A. (2005). Vineland adaptive behavior scales (2nd ed.), Circle Pines, MN: AGS.
  • Tint, A. i Weiss, J. A. (2016). Family wellbeing of individuals with autism spectrum disorder: A scoping review. Autism, 20(3), p. 262-275.
  • Tullis, C. A. i Zangrillo, A. N. (2013). Sexuality education for adolescents and adults with autism spectrum disorders. Psychology in the Schools, 50(9), p. 866-875.
  • Turcotte, P.; Mathew, M.; Shea, L. L.; Brusilovskiy, E. i Nonnemacher, S. L. (2016). Service needs across the lifespan for individuals with autism. Journal of Autism and Developmental Disorders, 46(7), p. 2480-9.
  • Turner, D.; Briken, P. i Schoettle, D. (2017). Autism-spectrum disorders in adolescence and adulthood: focus on sexuality. Current Opinion in Psychiatry, 30(6), p. 409-416. doi: 10.1097/YCO.0000000000000369
  • Vargas, F. (2001). Escenarios y tendencias en el mundo del trabajo y de la educación en el inicio del siglo XXI: el nuevo paradigma del aprendizaje a lo largo de la vida y la sociedad del conocimiento, en Blas F. A. i Planells, J. (coords.) Retos actuales de la educación técnico-profesional. Madrid: OEI.
  • Vasilopoulou, E. i Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: A systematic review, Research in Autism Spectrum Disorders, 23, p. 36-49.
  • Webster-wright, A. (2009). Reframing professional development through understanding authentic professional learning. Review of Educational Research, 79 (2), p. 702-739.
  • Weizenmann, L. S.; Pezzi, F. A. S. i Zanon, R. B. (2020). InclusÃo Escolar E Autismo: Sentimentos E PrÁticas Docentes. Psicologia Escolar E Educacional, 24, e217841. doi: 10.1590/2175-35392020217841
  • Wing, L.; Gould, J. i Gillberg, C. (2011). Autism spectrum disorders in the DSM-V: Better or worse than the DSM-IV? Research in Developmental Disabilities, 32(2), p. 768-773.
  • Zheng, L.; Grove, R. i Eapen, V. (2019). Spectrum or subtypes? A latent profile analysis of restricted and repetitive behaviours in autism. Research in Autism Spectrum Disorders, 57, 46-54. doi: 10.1016/j.rasd.2018.10.003